This story is from Kaiser Health News When Patrick Mannion heard about the Michigan woman denied a heart transplant because she couldn’t afford the anti-rejection drugs, he knew what she was up against. On social media posts of a letter that went viral last month, Hedda Martin, 60, of Grand Rapids, was informed that she
A baby born in Washington with a rare skin condition is surviving against the odds. Alicia Barber’s son Jamison, 1, was born with Harlequin ichthyosis, a rare genetic mutation that means his skin is covered with hard scales, and requires baths in bleach twice a week and rough exfoliation to stave off infections. The disease
A baby born in Washington with a rare skin condition is surviving against the odds. Alicia Barber’s son Jamison, 1, was born with Harlequin ichthyosis, a rare genetic mutation that means his skin is covered with hard scales, and requires baths in bleach twice a week and rough exfoliation to stave off infections. The disease
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